Resources

Patient Support Organizations

The following is a list of health related organizations that provide information and assistance. Additional support can be found here.

Alliance of Claims Assistance Professionals 

ALS Association

AMD Alliance International

American Association of Kidney Patients

American Association for the Study of Liver Diseases

American Autoimmune Related Diseases Association, Inc

American Cancer Society 

American College of Rheumatology

American Diabetes Association 

American Heart Association

American Liver Foundation

American Lung Association

American Kidney Fund

American Pain Foundation

American Porphyria Foundation

American Society of Clinical Oncology 

American Transplant Foundation

Anxiety and Depression Association of America

Aplastic Anemia & MDS International Foundation

Arthritis Foundation

Asthma and Allergy Foundation of America

Association of Community Cancer Centers

Association of Pediatric Hematology & Oncology 

Association of Peyronie’s Diseases Advocates

Boom!Health

Bladder Cancer Advocacy Network (BCAN)

Breast Cancer Research Foundation

Cancer101, Inc

Cancer Financial Assistance Coalition

Cancer Support Community

CCCH -Candlelighters Childhood Cancer Foundation 

Can Do Multiple Sclerosis 

Carcinoid Cancer Foundation

Caring for Carcinoid Foundation

Cerebral Palsy Guidance

Colon Cancer Alliance

Colorectal Cancer Coalition

Consortium of Multiple Sclerosis Centers (CMSC)

Crohn’s & Colitis Foundation of America 

Cutaneous Lymphoma Foundation

Cystic Fibrosis Foundation

Endocrine Society

Fatty Liver Foundation 

Gastric Cancer Foundation

HCU Network America

Huntington’s Disease Society of America

International Foundation for Gastrointestinal Disorders 

Iron Disorders Institute 

Joe’s House

Life Beyond Hep C

Living Beyond Breast Cancer

Lois Merrill Foundation for Carcinoid and other Rare Disorders

Lung Cancer Alliance

Lupus Foundation of America

Lupus Research Institute

Lymphoma Research Foundation 

Macular Degeneration Association

Melanoma International Foundation

Multiple Myeloma Research Foundation

Myelodysplastic Syndromes Foundation

National Association of Healthcare Advocacy Consultants 

National Cancer Institute (NCCS)

National Children’s Cancer Society

National Coalition for Cancer Survivorship

National Council on Aging 

National Hospice and Palliative Care Organization 

National Infusion Centers Association

National Kidney Foundation

National Lung Cancer Partnership

National Multiple Sclerosis Society

National Psoriasis Foundation

National Brain Tumor Society

Northeast ALS Consortium (NEALS) 

Parkinson’s Foundation

Pulmonary Fibrosis Foundation

Spondylitis Association of America

Tourette Association of America

Triage Cancer

Vasculitis Foundation